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The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. Then came the call that offered new life. "None of it spooked me," Claire said afterward. She was 21. Menu. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. Music was her biggest stressbuster and was part of Philips Breathless Choir as a solo artist. Entrepreneur and founder of the award-winning non-profit organization Claires Place Foundation, which provides support to families living with Cystic Fibrosis. She loved every moment of her life, even those days when she was in hospital. So grateful for everything this month. It took having a fair amount of relationships and casual sex before I realized that I wasnt the empty smiling shell of a girl I saw reflected back in pictures. Claire | The Documentary 4,508,139 views 3 years ago Directed by Oscar-winning filmmaker Nick Reed & Ryan Azevedo, the film tells the story of activist and Claire's Place Foundation Founder. She laughed at the absurdities that often swirled around her, including those moments in the produce aisle at Whole Foods when shoppers would prescribe her unsolicited "cures," telling her to eat more pineapple or that a mushroom cleanse would take care of everything.She was of the mind that she would leave this world with the body she came in with. Despite emergency surgeries, and what her mother described as Herculean efforts to try to save her, the daughter she knew was gone. The progressive disease creates too much mucus in the lungs and other organs, causing infections and problems with digestion. She has also authored the book, Every Breath I Take, Surviving and Thriving with Cystic Fibrosis.. I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. I'm grateful for the chance to keep being a person," she said. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. She was an avid dog lover and had a dog named- Daisy.. Shed work on a book promising it wouldnt be another happy sick person book and appreciate the small things like swims in the ocean for as long as she was able. Claire, who understood the importance of organ donation, was a donor herself. Sign up here to get The Results Are In with Dr. Sanjay Gupta every Tuesday from the CNN Health team. At one point, Claire looked at her mom and said, After you die, youre closer to everyone you love because youre part of everything, Yeager remembered. She needed financial help. She was placed in a medically-induced coma, for 16 days. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. James Arness Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Claire Wineland's death was caused by stroke. Its a GO!! Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. Anna May Wong Cause of Death, Age of Death, and Other Facts! I'm willing to deal with anything.". Claire Wineland spent a quarter of her life in the hospital. [3] The foundation offers both emotional and financial support through their Support Families Network andthe Extended Hospital Stay Grants program. Who was Ukrainian minister Denys Monastyrsky? Last night at 6 pm- my dear friend and little soul sister -Claire took her last. Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. Search by Name. In late May, she made the list and shared the exciting news with her social media followers who dot the globe. Claire Wineland, who inspired millions on YouTube chronicling her cystic fibrosis battle, has died after a lung transplant By Kyle Swenson September 4, 2018 at 3:58 a.m. EDT YouTube star. What happened in the Ukraine helicopter crash? I dont want to actually die. At one point, Claire looked at her mom and said, "After you die, you're closer to everyone you love because you're part of everything," Yeager remembered.These words were a gift, a reminder that Claire would remain with her always, even after she was gone. I learned to deeply hate having my picture taken by professionals because there was always a need to make me look childlike and innocent- lacking in anything sexual or appealing. Required fields are marked *. To face each day, Claire Wineland undergoes hours of breathing treatments. The medical team that tended to her became family. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. Some people worried that she'd waited too long and wouldn't be given the chance at continued life.But Claire took on the evaluation process to get on the list with laser focus. Read about our approach to external linking. She wasnt done contributing. pic.twitter.com/BsTEFmquR7. Read about our approach to external linking. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. She started a YouTube channel in which she spoke about her experiences which attracted more than 250,000 subscribers. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. Check out the death cause, death date, and more facts about the circumstances surrounding entrepreneur Claire Wineland's death. Sense of injustice lingers after Seoul Halloween crush, Chess gets a risqu makeover. At the time of birth, she had the life expectancy of only 5 years old. All Rights Reserved. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on. I want to see where it goes. Given the severity of the stroke and Claire's advance directive, it became clear that it was time to let her go. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. I had to be honest, she once explained. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. Extended Hospital Stay Grants provide financial assistance to families who find it difficult to arrange funds for an extended hospital stay. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. A self-described goofball, she usually engaged people with humor and optimism. [3] At age 13, her lungs failed and she was placed in a medically-induced coma. Obituaries Section. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. Wineland stated she did not have the energy or the money to take the case to court. Claire took the gift of life and her health seriously, but she didnt take herself too seriously. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. Get breaking news alerts& today's headlines inyour inbox. Living a life we can be proud of is something we can control. She has a younger sister, Elanore Nordquist. She listened to the risks and the long list of side effects and emerged unfazed. To get on the list for new lungs, she had to be sick enough to need them, yet strong enough to withstand the surgery and recovery. A post shared by Claire Wineland (@claire.wineland) on Apr 2, 2018 at 4:55pm PDT. She was 21. Ive struggled more with guys, depression drugs, family and career than I ever have with my illness. You can have a painful life. She is my new hero, and forever. @larissaperoux We some cheese balls just cheesing it up. According to her, pitying ill people was disempowering them. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. Im just really overwhelmingly grateful for all of this. [9], The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness. William Halford Cause of Death, Date of Death, and More! Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! James Watt Cause of Death, Age of Death, and Other Facts! She was 21. Sympathy . Check out the death cause, death date, and more facts about the. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! I mean that seriously, she said with her signature smile and laugh, her eyes not yet dry. Wineland miraculously came back to life. She has a younger sister named Ellie Wineland. She took great care to decorate her hospital room so it felt and looked like home.Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care.Her father credits Claire with teaching him "to not be afraid of what hasn't happened yet" and to learn to "love what is. She had a younger sister named, Ellie. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. Snap Greene is the alter-ego of 13 year old Claire Wineland. Her parents, Melissa Nordquist Yeager and John Wineland, split up when Claire was 3, but they remained friends and partners in her care. [2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.[2], On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. Claire Wineland is shown on April 4, 2016 in Rancho Palos Verdes, California. Claire Wineland was a person who did not like to be pitied. I didnt expect to have a chance. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. This time, she was raw and allowed herself to cry. FamousBirthdays.com - use subject to the information collection practices disclosed in our privacy policy. Sign up for our email list to stay in the know. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". Save my name, email, and website in this browser for the next time I comment. What happened in the Ukraine helicopter crash? [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. The US-based Cystic Fibrosis Foundation says more than 70,000 people live with the condition worldwide, She started a YouTube channel in which she spoke about her experiences, Cystic fibrosis drug cost 'should be lowered', Jeremy Renner TV show poster edited after accident, Maximum two drinks a week, Canada guidance advises, Baby among six killed in possible cartel hit in US, German police deny Greta's detainment was staged, US porn star declared unfit for sex crimes trial, Keep cake away from office, says food adviser, Graceland estate will stay in Presley family. She had upwards of 30 surgeries; she died from a massive stroke following one of her transplant surgeries. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". You can suffer, you can experience what its like to feel like a human beingall those messy and gross emotionsand yet you can make a life for yourself that you are very, very proud of., What people said about her: In Claire fashion, she is an organ donor. Read full obituary. Here are some ways. Growing up, I didnt have any role models that were sick that were doing anything with their life, ever. Who is Claire Wineland? Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. Claire Lucia Wineland (April 10, 1997 - September 2, 2018) was an American activist, author, speaker and social media personality. She played hide-and-seek with nurses and left explosions of glitter in her wake. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Its not for me and never has been.. Wineland was a singer, artist, and composer. In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. A post shared by Claire Wineland (@claire.wineland) on Mar 19, 2018 at 11:32am PDT, Life-changing drug cost 'should be lowered', Ukrainian ministers killed in helicopter crash, We need to end this war, says Zelensky, after fatal helicopter crash, Iran man who beheaded wife jailed for eight years. At the time of birth, she had the life expectancy of only 5 years old. Claires Place Foundation is planning to continue extending support to patients. In her last post on social media before her transplant, Ms Wineland spoke about the importance of organ donation for those with cystic fibrosis. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! "Death is Inevitable. The BBC is not responsible for the content of external sites. She appeared in an episode of Red Band Society and in the documentary series My Last Days. Claires gift is huge, I want your family to know that your daughter is a hero.. Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. No Claire was born with a severe disease- Cystic fibrosis (CF), a condition that affects breathing and digestion. We invite you to share condolences for Claire Wineland . A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. Hap Moran Cause of Death, Age of Death, and Other Facts! Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! After work hours guitarist, DJ, record label owner and New York style pizza aficionado. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. She inspired countless people, invited -- no, demanded -- honest talk about illness and mortality, and brightened the worlds of those she touched with her smile, spunk and spirit.On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. She revealed that The Clairity Project was not under her control. Claire Wineland 1997 - 2018 Share BORN 1997 DIED 2018 CLAIRE WINELAND OBITUARY Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to. See yall on [the] other side.. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. ", Claire took the gift of life and her health seriously, but she didn't take herself too seriously. Yeager posted a video of herself doing a happy dance with friends in the waiting room. She sat in an educational meeting at UC San Diego Healths transplant center and diligently took notes. Despite this, she maintained a large following on Twitter and Instagram, speaking frankly about her life and sharing personal moments. Associated With She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. Last night at 6:00pm, Claire Wineland our inspirational founder passed away. CNN Sans & 2016 Cable News Network. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. I didn't expect to have a chance. Updated The years of telling myself I can do it on my own are over.. So grateful for everything this month. We invite you to share condolences for Claire Wineland in our Guest Book. It was released on the first anniversary of Wineland's death. Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. The BBC is not responsible for the content of external sites. Regarding her nationality, Wineland was an American and ethnicity wise she was white. Claire suffered a stroke when a blood clot cut off blood flow to the right side of her brain. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. 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